The Problem

Modern health data now extends beyond medical records to include information from wearable devices and personal health technology. These records exist within separate systems designed to prioritize institutional interests over interoperability, limiting both patient access and clinical coordination. This fragmentation leaves patients and doctors struggling to coordinate care across multiple platforms and keeps potentially life-saving data inaccessible. In an era when large institutions and governments are losing credibility, the need for personal control of our data has never been greater. As artificial intelligence rapidly integrates into healthcare, patients and clinicians need secure, accurate, and complete health information and the ability to choose how it's used within this new ecosystem; both as a training mechanism and as context for AI / EHR interactions .

Our Mission

HIE of One offers a free, open-source, patient-controlled alternative to the standard electronic health record. We feel that patient-controlled data is essential to safety and good health. HIE of One's Trustee Community is designed to facilitate the assembly of patients and Clinicians with common interests and motives without the involvement of large institutions, corporations, and similar monoliths. Our standards-based platform integrates with major healthcare systems, electronic health records, and consumer health apps, enabling both providers and patients to consolidate and manage health information from multiple sources in one secure, patient-controlled environment.

Key Differentiators

• Open Source: This is a community driven development effort. If you are a developer and want to participate or read more about the software, please visit us on GitHub.

• Decentralized: Standards-based, decentralized services provide the freedom and utility to ultimately change the way software is built. As a strong proponent of community-driven software development, we believe that the decentralized nature of our service makes it uniquely suited to serve healthcare. While HIE does not need wide adoption in order to succeed, we do hope to be enough of a force to encourage standards adoption by large vendors.

• Sovereign: AI will undoubtedly change some aspects of healthcare. Rather than sit in judgment of this, HIE seeks to foster meaningful, transparent, and responsible interaction between AI and EHRs. It is essential that patients have control over their data, and doctors over their notes and teaching files, so they can take responsibility for their interactions with AI. As with any tool, the outcome depends on how it’s used, and while accountability in AI isn't widely discussed today, it will become a key issue as its role in healthcare grows.

Now that you know where we stand, here's the better news: it works! This whole product is in beta, but you can experiment with all aspects of open source EHRs today. Here's how:

Demo

Experience for yourself how our open-source EHR works for both patients and Clinicians !

Try the Demo

Key Repositories:

• Trustee Community
• NOSH
• MAIA
• GNAP Client Support